Kaylee has Dravet Syndrome, a severe seizure disorder with no cure. Kaylee’s brave fight includes medicines, appointments, emergency medical treatments, hospital stays, etc. all while being constantly monitored.
In November 2016 our family was granted a wish by the Make-A-Wish Foundation. My daughter’s dream of meeting Ariel (Disney) became a reality. This moment is one that our whole family needed more than we ever knew. It gave us pure joy to see Kaylee have her wish granted. It came at a time our family needed to be reminded that we should enjoy every good moment (even when her syndrome creates so many challenging ones).
Make-A-Wish treated my daughter with the syndrome like a princess and my son was treated like royalty as well. I could write a whole book about our experience with Make-A-Wish and it's positive impact.
After our trip, we knew as a family we wanted to give back so we took part in our first Make-A-Wish Walk. We volunteered and got to meet the most giving group of people who do everything they do for all those families in need. We continue as a family to volunteer and take part in the walk each year and it is one of our most favorite days to be surrounded by so many who care.
Thank you Make-A-Wish.
Residing in Barrington, Carrie has participated in the Make-A-Wish Illinois Walk for Wishes event since 2017. Her 9-year-old daughter and wish alum, Kaylee, was a 2017 Wish Ball ambassador. Carrie is also a middle school teacher in school district 220.
PHOTO: Carrie, Kaylee and family with co-emcee Fred from 103.5 KISS-FM Chicago in 2017.